PEDIATRIC:
Little Hearts, Inc.
www.littlehearts.orgLittle Hearts, Inc. is a non-profit
organization founded in January 1998. We provide support, resources, networking, and hope to families affected by congenital
heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect.
Our mission is to offer support and hope to families affected by congenital heart defects through our support services and
to promote public awareness for this #1 birth defect. Newly diagnosed with a baby having a congenital heart defect? Looking
to talk with another family who understands what you're going through? Let us help and put you in touch with them.
Kids With Heart National Association
For Children's
Heart Disorders, Inc.
www.kidswithheart.org1-800-538-5390
Kids With Heart National Association for Children's Heart Disorders, Inc.was established in 1985 and incorporated
in 1991. We are a non-profit 501 C 3 organization with the mission of providing support, education and resources to
families of children who have heart disorders, both congenital and/or acquired in childhood. Our philosophy is that
parents need as much information as possible to assist them in making decisions regarding their child's care. We
are also extremely involved in promoting awareness of congenital heart defects through a variety of methods. We welcome
your questions and comments through our website and toll free number.
For over 10 years, Baby Hearts Press has
been providing resources for the congenital heart defect community. The owner of Baby Hearts Press is Anna Jaworski. She is
the author of Hypoplastic Left Heart Syndrome: A Handbook for Parents and children's book, My Brother Needs an Operation.
She is also the editor of The Heart of a Mother and The Heart of a Father (in progress). Through Baby Hearts Press, Anna has
provided letters, articles and books for people interested in learning more about congenital heart defects and the effects
of having a child with a congenital heart defect on the family. Anna is also a public speaker who has spoken at numerous conferences
for families and professionals. Please visit our website for more information.
This is the most comprehensive site on
the World Wide Web for congenital heart defect resources. An off-shoot of Baby Hearts Press, this website has all free information
for the congenital heart defect community. There you will find news of upcoming events and a calendar with CHD-related events
by month, descriptions of heart defects and medical term definitions, questions and comments regarding CHDs, a treasure-trove
of resources -- including lists of hospitals treating CHDs and support groups, interesting articles about CHDs and information
about CHD Awareness and Legislation -- and more! Feel free to visit, browse the site and leave a message on our message board.
You never know what help you'll find or encouragement you'll be able to leave for someone else.
This is the newest Baby Hearts Press website!
This brand new website was established to keep our CHD friends and family apprised of what's going on with Baby Hearts
Press from a more personal perspective. Anna shares current situations she is facing and news of upcoming events on the site.
Since Anna has learned how to upload pictures, you can even see for yourself some of the fun things Baby Hearts Press is up
to. Please feel free to visit the site and post a comment.
ADULT:
The Adult Congenital Heart Association (ACHA) is a nonprofit organization which seeks to
improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy
and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their
families and the medical community. Please check our list for a local group in your area.
